Disability, and what it means to be a disabled person, is socially, culturally, and historically created. Disability studies, and associated disability research, is a relatively recent and burgeoning arena within the social sciences. This entry shall first summarize the shift in understandings by contrasting the individual and social models of disability—a model being a set of assumptions about how an event or process operates. The entry then explores the implications of this shift in disability research and policy. Finally, the entry looks toward future possibilities in establishing the full participatory citizenship of disabled people.
Within every society there are competing models of disability, with some being more dominant than others at different times. The most dominant model of disability is the individual model, which is based upon the assumption that the difficulties disabled people experience are a direct result of their individual physical, sensory, or intellectual impairments (Oliver and Sapey 2006). Thus, the blind person who falls down a hole in the pavement does so because he or she cannot see it, and the person with a motor impairment fails to get into a building because of his or her inability to walk. Problems are thus viewed as residing within the individual. The individual model of disability is deeply ingrained and “taken as given” in the medical, psychological, and sociological literature. Even in the literature on the sociology of health and illness, disability, as disabled people define it, is basically ignored (Barnes and Mercer 1996).
The medical model can be regarded as a subcategory of the overarching individual model of disability, where disability is conceived as part of the disease process, as abnormality, and as individual tragedy—something that happens to unfortunate individuals on a more or less random basis. Treatment, in turn, is based upon the idea that the problem resides within the individual and must be overcome by the individual’s own efforts (French 2004). Disabled people have, for example, been critical of the countless hours they have spent attempting to learn to walk or talk at the expense of their education and leisure (Oliver 1996).
None of these arguments implies that considering the medical or individual needs of disabled individuals is wrong; the argument is that the individual model of disability has tended to view disability only in those terms, focusing almost exclusively on attempts to modify people’s impairments and return them or approximate them to “normal.” The effect of the physical, attitudinal, and social environment on disabled people has been ignored or regarded as relatively fixed, which has maintained the status quo and kept disabled people in their disadvantaged state within society (Oliver and Sapey 2006).
The social model of disability is often referred to as the “barriers approach,” where disability is viewed not in terms of the individual’s impairment, but in terms of environmental, structural, and attitudinal barriers that impinge upon the lives of disabled people and that have the potential to impede their inclusion and progress in many areas of life, including employment, education, and leisure, unless the barriers are minimized or removed (Oliver 1996). These barriers include inaccessible education or lack of education, inaccessible information and communication systems, inaccessible working environments, inadequate or lacking disability benefits, discriminatory health and social-care services, and inaccessible transport, housing, public buildings, and amenities (Swain et al. 2004). The social model of disability also encompasses the tragedy model in all its manifestations, such as the devaluation of disabled people through negative images in the media, including films, television, and newspapers (Darke 2004).
The social model of disability locates disability not within the individual disabled person, but within society. Thus the person who uses a wheelchair is not disabled by paralysis but by building design, lack of lifts, rigid work practices, and the attitudes and behavior of others. Similarly, the visually impaired person is not disabled by lack of sight, but by lack of reading materials in Braille, cluttered pavements, and stereotypical ideas about blindness. The social model takes a holistic approach in that specific problems experienced by disabled people are explained in terms of the totality of disabling environments and cultures (Oliver 2004).
The social model of disability has arisen from the thinking and writings of disabled people themselves, and particularly from the disabled people’s movement. The disabled people’s movement comprises organizations of disabled people in which disabled people are in positions of control.
The experiences of disabled people in the Western world gave birth to the social model of disability. It is an expression of commonality and resistance to the dominant individual, medical, and tragedy models. To look globally, however, raises a possibly more complex and controversial picture. On one hand is the social and historical construction of disability. To be impaired and disabled in China, in Afghanistan, in Zambia, or in the United States—in the high-income “developed” or minority world and the low-income “developing” or majority world—addresses widely differing experiences and encompasses different meanings. Perhaps not surprisingly, the picture is complex, including both cultural diversity and commonalities (Flood 2005; Sheldon 2005). Provision for disabled people also varies greatly from country to country. Most countries in the majority world, for instance, do not have a welfare state.
Though attitudes toward disability are generally universally negative, there are cultural differences (Ingstad and Reynolds Whyte 1995). First are the ways in which the body and physical characteristics are given value and meaning. Western biomedical definitions of impairment are not universal, and perceptions of the body and mind vary across cultures and also change over time (Hughes 2002). Religion and the messages various religious doctrines convey about disability are also significant (Ingstad and Reynolds Whyte 1995), as is language and the notion that key concepts may not easily translate into other languages and cultures (Stone 1999b).
Notwithstanding the importance of cultural differences, subtle and not so subtle, it can be argued that commonality is an overriding picture. Commonality is engendered particularly by multideprivation, predominantly through common experiences of poverty. Disabled people are the poorest of the poor in all countries, in terms of relative poverty in the developed world and in terms of absolute poverty in the developing world (Stone 1999a).
The establishment and growth of an international disabled people’s movement, particularly through the Disabled Peoples’ International (DPI), is in part at least an expression and realization of such commonality. As of 2007 DPI represented approximately 130 national assemblies, many of which, in turn, represent thousands of disabled individuals with all manner of impairments, including people with intellectual impairment. In 1992 DPI acknowledged that it was a human rights organization and that its membership was individually and collectively committed to global justice for disabled people. DPI is also committed to ensuring that the voice of disabled people is heard in the development of all policies and programs that directly affect them, a commitment expressed in the DPI slogan, Nothing About Us Without Us. As a result, DPI has had considerable influence in formulating the United Nations World Programme of Action Concerning Disabled Persons (1983) and the United Nations Standard Rules on Equalization of Opportunities for Persons with Disabilities (1993).
In 1992 DPI joined other international disability organizations to set up an international information network on disability and human rights with the objective of supporting disabled people’s actions at the grassroots to implement those rights. This network, Disability Awareness in Action, published a monthly newsletter, the Disability Tribune, from 1992 to 2005 and produces numerous resource kits on issues of particular concern, such as organization building, consultation and influence, campaigning, and working with the media (Hurst 2005).
Turning to research, estimates of the number of disabled people are problematic given the variations in definitions of disability, both nationally and internationally, and the wide variety of associated impairments (Swain and French 2004). Estimates suggest that there are around 500 million disabled people in the world population. The majority, around 80 percent, of disabled people live in the developing world, the main causes of impairment being poverty, inadequate sanitation, malnutrition and a poor water supply, and more recently AIDS. Furthermore, statistics from European countries suggest that the percentage of the population that is disabled increases with age, particularly for certain disabilities such as visual impairment and hearing loss. Figures concerning comparative numbers of people in employment and education show that people with impairments are among the most disadvantaged groups around the world (Giddens 2006).
Such statistics are clearly important for disabled people, their supporters, service providers, and policymakers in establishing mandates for change. The development of the social model, however, has underpinned critiques of research, challenging who controls and produces research, priorities in funding, and ultimately the establishment of full citizenship for disabled people (Barnes 2004). Again, the central argument is that the individual model has dominated research. Negative impacts have also come from global genetic advances and assessments of disabled people’s quality of life, as well as multinational pharmaceutical companies’ hold over research, patenting, and genetic advances; the invisibility of disabled people from mainstream activity and information; and the silence of disabled people’s voices in the corridors of power and change (Hurst 2003). Statistics, whether valid or reliable, relating to the numbers of disabled people provide no information about the availability of accessible houses, transport, or so-called public buildings. Such counting of heads can carry the connotation that it is disabled individuals who create the “problem,” rather than the disabling society. The social model has fueled arguments for a different methodological approach to researching disability issues, an approach that is informed by the social model and in which the production of research is controlled by disabled people. Associated developments in social science research are generally subsumed under the umbrella term emancipatory research (Barnes 2004).
In terms of social policy, the international shift driven by the social model is evident in the establishment of rights-based policy, both civil and human. By 2007 antidiscriminatory legislation had been enacted in at least forty UN member states. There are, however, significant differences in these legislative frameworks, and general critiques focus on the lack of clear and effective enforcement mechanisms, with terms such as reasonable adjustment providing broad grounds for noncompliance—that is, antidiscriminatory legislation that allows for and legalizes discrimination against disabled people. Furthermore, the social model should not be simplistically equated with what has come to be referred to as the rights-based model. The social model encompasses and informs broader mandates for social change in realizing social justice for disabled people.
One broader front for social change has been developed under the banner of independent living (Barnes and Mercer 2006). This concept, as defined by disabled people themselves, is founded on four basic assumptions:
- All human beings are of equal worth, regardless of the nature, complexity, or severity of their impairments.
- Everyone, regardless of the nature, complexity, or severity of their impairments, has the capacity to make choices in controlling their lifestyles and should be supported in making such choices.
- Disabled people have the right to exercise control over their lives.
- Disabled people have the right to participate fully in all areas—economic, political, and cultural—of mainstream community living on an equal basis with their nondisabled peers.
The independent-living movement began through the establishment of centers for independent living (CILs), which are self-help organizations for disabled people that are run and controlled by disabled people themselves. There are now CILs or similar organizations providing support for disabled people and their families in many countries around the world. Furthermore, the idea of independent living, as conceived by disabled people, has had a notable impact on disability policy globally. Disabled people and organizations of disabled people have increasingly become involved in policymaking at local, regional, national, and international levels (Barnes and Mercer 2006).
Turning finally to the possible directions for disability policy and social science research, the goal remains essentially the same: the creation of a society in which all disabled people are able to participate as equal citizens. Under the umbrella of independent living, this includes equal access to mainstream education, paid employment, transport, “public” buildings, housing, leisure, and health-and social-care services. Mainstreaming is a key concept. The mainstreaming of disability issues within policy agendas addresses the marginalization of the needs and rights of disabled people and their treatment as “special” cases. This presents fundamental challenges to policymaking in realizing the prerogatives of flexibility, the expertise of disabled people, and the recognition that “one size does not fit all.” Mainstreaming also requires the breaking down of the physical, social, communicative, and economic barriers that prevent disabled people from exercising their rights and participating in policymaking.
The creation of participative citizenship will involve the strengthening and enforcement of legislation and procedures to ensure that disability and independent-living issues are fully integrated into policymaking at all levels: international, national, regional, and local. This includes the enactment of binding and intractable antidiscrimination legislation with effective enforcement and compliance requirements. The economic and management implications include the financing of organizations of disabled people, including CILs, and research controlled by disabled people, particularly organizations of disabled people and their representatives.
There are, furthermore, democratic and participatory possibilities afforded by the Internet and other technological developments. These technologies have opened up opportunities for dialogic, or participative rather than representative, democracy. The Internet allows a greater diversity of voices to be heard and has the potential to be profoundly democratizing. The danger is the possibility of the further marginalization of the “unconnected,” the disabled people who are the poorest of the poor, for whom survival is the political perspective and for whom sophisticated technology is not available. It is also the case that new technologies are developed within disabling societies and are not available to many disabled people unless adaptations are made that are often expensive (Goggin and Newell 2003).
Overall, paramount to the evolving direction is the emerging voices of disabled people in controlling decision-making processes across policy and research that shapes day-to-day lifestyles, opportunities, and choices. It is an ongoing struggle for a truly equitable and inclusive society with justice and full participative citizenship for all.
SEE ALSO Civil Rights; Human Rights; Social Exclusion
Barnes, Colin. 2004. Reflections on Doing Emancipatory Disability Research. In Disabling Barriers—Enabling Environments, ed. John Swain, Sally French, Colin Barnes, and Carol Thomas, 47–53. 2nd ed. London: Sage.
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Barnes, Colin, and Geoffrey Mercer. 2006. Independent Futures: Creating User-led Disability Services in a Disabling Society. Bristol, U.K.: Policy Press.
Darke, Paul Anthony. 2004. The Changing Face of Representations of Disability in the Media. In Disabling Barriers—Enabling Environments, ed. John Swain, Sally French, Colin Barnes, and Carol Thomas, 100–105. 2nd ed. London: Sage.
Flood, Tara. 2005. “Food” or “Thought”? The Social Model and the Majority World. In The Social Model of Disability: Europe and the Majority World, ed. Colin Barnes and Geoffrey Mercer, 180–192. Leeds, U.K.: Disability Press.
French, Sally. 2004. Enabling Relationships in Therapy Practice. In Enabling Relationships in Health and Social Care, ed. John Swain, Jim Clark, Karen Parry, et al., 95–108. Oxford, U.K.: Butterworth-Heinemann.
Giddens, Anthony. 2006. Sociology. 5th ed. Cambridge, U.K.: Polity.
Goggin, Gerard, and Christopher Newell. 2003. Digital Disability: The Social Construction of Disability in New Media. London: Rowman and Littlefield.
Hughes, Bill. 2002. Disability and the Body. In Disability Studies Today, ed. Colin Barnes, Mike Oliver, and Len Barton, 58–76. Cambridge, U.K.: Polity.
Hurst, Rachel. 2003. Conclusion: Enabling or Disabling Globalization. In Controversial Issues in a Disabling Society, ed. John Swain, Sally French, and Colin Cameron, 161–170. Buckingham, U.K.: Open University Press.
Hurst, Rachel. 2005. Disabled People’s International: Europe and the Social Model of Disability. In The Social Model of Disability: Europe and the Majority World, ed. Colin Barnes and Geoffrey Mercer, 65–79. Leeds, U.K.: Disability Press.
Ingstad, Benedicte, and Susan Reynolds Whyte. 1995. Disability and Culture. Berkeley: University of California Press.
Oliver, Michael. 1996. Understanding Disability: From Theory to Practice. London: Macmillan.
Oliver, Michael. 2004. If I Had a Hammer: The Social Model in Action. In Disabling Barriers—Enabling Environments, ed. John Swain, Sally French, Colin Barnes, and Carol Thomas, 7–12. 2nd ed. London: Sage.
Oliver, Michael, and Bob Sapey. 2006. Social Work with Disabled People. 3rd ed. Basingstoke, U.K.: Macmillan.
Sheldon, Alison. 2005. One World, One People, One Struggle? Towards the Global Implementation of the Social Model of Disability. In The Social Model of Disability: Europe and the Majority World, ed. Colin Barnes and Geoffrey Mercer, 115–130. Leeds, U.K.: Disability Press.
Stone Emma. 1999a. Disability and Development: Learning from Action and Research on Disability in the Majority World. Leeds, U.K.: Disability Press.
Stone Emma 1999b. Modern Slogan, Ancient Script: Impairment and Disability in the Chinese Language. In Disability Discourse, ed. Marian Corker and Sally French, 136–147. Buckingham, U.K.: Open University Press.
Swain, John, and Sally French. 2004. Researching Together: A Participatory Approach. In Physiotherapy: A Psychosocial Approach, ed. Sally French and Julius Sim, 317–331. 3rd ed. Oxford, U.K.: Elsevier.
Swain John, Sally French, Colin Barnes, and Carol Thomas, eds. 2004. Disabling Barriers—Enabling Environments. 2nd ed. London: Sage.
"Disability." International Encyclopedia of the Social Sciences. 2008. Encyclopedia.com. (May 30, 2016). http://www.encyclopedia.com/doc/1G2-3045300602.html
"Disability." International Encyclopedia of the Social Sciences. 2008. Retrieved May 30, 2016 from Encyclopedia.com: http://www.encyclopedia.com/doc/1G2-3045300602.html
DefinitionsThere is no single commonly-accepted, straightforward definition of disability. The subject is complex and controversial. Three of the main sources for definitions of disability are the medical, social, and legal models. The medical model uses the World Health Organisation (WHO) definition. The WHO (1980) outlines the relationships between impairment, disability, and handicap. The simplified working definition is called the International Classification of Impairments, Disabilities, and Handicaps (ICIDH). It uses these terms to describe the inter-relationship, aiming to achieve consistency in the meaning and use of the labels. The focus is on functional difficulties.
A disease, disorder or injury produces an impairment causing a change to ordinary functioning. Impairment refers to failure at the level of organs or systems of the body. This means loss or abnormality of psychological, physiological or anatomical structure or function. A disability refers to the resulting reduction or loss of ability to perform an activity in the manner considered normal for a human being e.g. climbing stairs or manipulating a keyboard. A handicap is a social disadvantage resulting from an impairment or disability which limits or prevents the fulfillment of a normal role.
This medical model demonstrates an interplay of factors acknowledging that grey areas requiring interpretation are acceptable within the definition. For purposes of assessment, quite often what matters is not the medical condition but the accompanying decrease or loss of function resulting from a disability.
The social model separates a person's specific impairment from his or her disability. In this approach, ‘a person with an impairment becomes ‘disabled’ when the organization of the society in which they live excludes them from mainstream activities’ (Employers' Forum on Disability). The Royal College of Physicians stresses the need to consider disability in the context of ‘a disabled person's encounter with daily living, the environment and society, not only in specific circumstances, but in the whole of that experience’. This then can meet the needs of individual differences and concentrate on the external, reversible factors. Clarifying ‘barrier-free’ policies for everyone rather than ‘special case’ policies for people with labels creates a more dynamic approach.
The third model incorporates the legal aspect and includes the rights of the individual. The current UK Disability Discrimination Act (DDA), 1995, was introduced to progress individuals beyond the limitations of the 1944 register for disabled people and the quota system. The Act states that a person has a disability for the purposes of this Act if he has: ‘a physical or mental impairment which has a substantial and long term adverse effect on his ability to carry out normal day to day activities.’ The purpose of this legislation is to protect individuals with a disability which makes it difficult for them to carry out ordinary, routine, day to day activities. The disability can cover physical, sensory, or mental faculties. It must be substantial and last or be expected to last for at least one year. The Act requires employers with 15 employees or more to make ‘reasonable provision’ for disabled workers.
InterpretationThe definitions above utilize the words ‘normal’ and ‘reasonable’ which are of course wide open to interpretation, escalating to contentious and litigious argument whenever the financial stakes are high. This frequently results in queries around settlement of legal, industrial, discriminatory, or insurance claims, assessment for medical aid, supply of high-tech equipment, provision of expensive prostheses, and access to special facilities, including education. Allocation of these increasingly expensive, sophisticated, and necessarily limited resources always hinges on the assessment of the degree of disability. Thus, whatever the formal definition, it is crucial to relate the disability to the level of purposeful functioning. For example, a short-sighted person might meet one test for disability, whilst with corrective lenses few would regard his myopia as a disability. Yet, if the myopia was severe or seriously progressive, no one would argue that this visual problem or partial sight did not constitute a disability, a handicap, and an impairment. A significant disability like blindness does not prevent a senior politician from performing a leading role, although he has to find creative ways and support to overcome the functional handicaps of his impairment. A relatively minor impairment, the loss of a finger to a violinist or of a thumb to a labourer, would be both a major disability and an occupational handicap — although not so to a majority of lecturers or teachers. Many people manage life well with asthma, but for a plasterer this would signal a major life and job change.
The definitions given generally refer both to physical disabilities and to mental health problems. Care is needed with respect to the latter, since many people appear ‘normal’ and also cope well much of the time, although in practice their day to day functioning can be seriously affected. Mental illness is therefore at risk of going undetected, with the individual consequently deprived of the necessary support until significant inappropriate behaviour is displayed. The reasons are a combination of the invisible nature of the disability, the not infrequent lack of a formal diagnosis, and the poor level of awareness of mental health issues amongst the healthy population.
Disabled people do not form a static or easily-identified group distinct from the rest of society. Some impairments improve with time while others are exacerbated. There are disabilities that are invisible, like diabetes, dyslexia, hearing loss, and mental illness. People not born with impairments can acquire them through accident or illness, and others born with them may gradually deteriorate.
What becomes important is not the label, though in some cases like dyslexia (specific learning difficulties) the label is important in gaining access to resources, but the assessment of loss of function in the context of employment and of day to day living.
AssessmentWhen it comes to assessment for resources and state benefits, few of the disabled person's rights depend on what the condition is called. Rather, the allocation of the benefit or service depends on the effect of the disability on day to day life. Someone with a severe facial disfigurement, not deliberately acquired, may not have a named disability but can suffer severe embarrassment and social stigma to such an extent that there is a long-term adverse effect and considerable handicap. They would be defined as a disabled person under the DDA.
Within health assessments, it is common to distinguish between two levels of activities of daily living (ADL): basic ADL are those that are essential for all aspects of self care; instrumental ADL are those activities such as shopping, housekeeping, and using private or public transport that are necessary for someone to maintain a level of independent living, especially in the absence of a carer.
The purpose for which the results are to be used is a necessary prerequisite in making an assessment. If, for example, the information is for inclusion in a survey this would necessarily be less stringent than for access to a facility or resource.
Objective assessments attempt to measure disability in a standardized form to provide information for individual health care, educational access, job requirements, and legal rights. Health professionals may use a variety of structured approaches from screening questionnaires to diagnostic tools involving physical tests. Psychometric tests can also be used for assessments. They have to be reliable and valid and can be used to measure ability, aptitude, reasoning, and aspects of personality.
It is appropriate to allow for self- as well as observer-based assessments. The person most likely to know the constraints and possibilities of their condition is the individual, who may also be one of the best sources for describing creative solutions to get around the difficulties. Self-assessment together with objectivity from health or support workers is likely to provide a realistic picture of limitations and potential.
In general, assessment gives an indication of need, can help with prediction of problems, and can give measures of outcome and output. Any system of assessment needs to be reliable, valid, sensitive to change, acceptable, relevant, realistic, and practical to use.
PerceptionsThere is a strong need to combat bias and to dispel preconceptions in any review of disability. The disabled want the focus of their social relationships and medical interventions to be on their capabilities as far as that is reasonably possible. They wish to be accepted within society on an equal footing with equal rights. Typical situations include the doctor who addresses the carer rather than the individual, implying a perceived inability to communicate. Or, an employer may assume that disability will be an insuperable burden, dismissing the potential and commitment of the individual, in ignorance of the practical experience that disabled workers are frequently highly motivated, effective workers with good attendance records. Disabilities obviously can impose restrictions; but the goal many want as a right is unprejudiced, unfettered, and equal opportunity to demonstrate their creativity and their capability to function in day to day life and work.
InformationFor the newly injured or diagnosed access to good information is crucial to dealing successfully with the trauma. The obvious sources are the institutional ones (hospitals, social services, and relevant government bodies). At the next level are the organizations usually related to particular conditions or lobby groups. Frequently, informal support groups have developed precisely because there may be limited practical support and information available. These can usually be accessed via helplines or the media. Other sources include:(i) the Disability Rights Handbook, updated annually, published by Disability Alliance Education and Research Association;(ii) the Internet;(iii) the local library;(iv) special Olympics and sporting organizations;(v) the DDA information line;(vi) Ability, ‘The computer magazine about disability issues’;(vii) The Employers' Forum on Disability.
See also blindness; deafness; paralysis.
COLIN BLAKEMORE and SHELIA JENNETT. "disability." The Oxford Companion to the Body. 2001. Encyclopedia.com. (May 30, 2016). http://www.encyclopedia.com/doc/1O128-disability.html
COLIN BLAKEMORE and SHELIA JENNETT. "disability." The Oxford Companion to the Body. 2001. Retrieved May 30, 2016 from Encyclopedia.com: http://www.encyclopedia.com/doc/1O128-disability.html
Any physical, mental, sensory, or psychological impairment or deficiency resulting in the lack, loss, or substantial reduction of the ability to perform some normal function.
In the United States, the term disability is legally defined in the Rehabilitation Act (PL 93-112; 29 U.S.C. 794) Amendments of 1974 and the Americans with Disabilities Act (PL 101-336; 42 U.S.C. 12101) of 1990 as a physical or mental impairment that substantially limits one or more of the major life activities of an individual. Disabilities may be caused by congenital, traumatic, pathological, or other factors, and vary widely in severity. They may be temporary or permanent, correctable or irreversible. Physical disabilities include blindness, deafness, deformity, muscular and nervous disorders, paralysis, and loss of limbs. Paralysis is frequently caused by injuries to the spinal cord, with the extent of paralysis depending on the portion of the spine that is injured. Congenital disabilities include spina bifida, cystic fibrosis, and muscular dystrophy. Other causes of disabilities include cerebral hemorrhage, arthritis and other bone diseases, amputation, severe pulmonary or cardiac disease, nerve diseases, and the natural process of aging . Mental impairments are of two types: mental illness and mental retardation . Approximately 35 million people in the United States are disabled.
Professionals including physicians, physical and occupational therapists, social workers, and psychologists assist disabled persons in the rehabilitation process, helping them function at the highest possible physical, vocational, and social levels. Specialists in rehabilitation medicine, sometimes referred to as physiatrists, diagnose patients and plan individual treatment programs for the management of pain and disabilities resulting from musculoskeletal injuries. People with hearing or vision loss require special education , including instruction in lip reading, sign language, or Braille. Physical rehabilitation for individuals with musculoskeletal disabilities includes passive exercise of affected limbs and active exercise for parts of the body that are not affected. Occupational training, including counseling, helps persons whose disabilities make it necessary for them to find new jobs or careers. Rehabilitation also involves the services of speech pathologists, recreational therapists, home planning consultants, orthotists and prosthetists, driver educators, and dieticians.
Recent technological advances—especially those involving computer-aided devices—have aided immeasurably in mainstreaming the disabled into many areas of society. These include voice-recognition aids for the paralyzed; optical character-recognition devices for the blind; sip-and-puff air tubes that enable quadriplegics to type and control wheelchair movements with their mouths; and computerized electronic grids that translate eye movements into speech. In addition to access, mobility for the disabled has become an area of concern. The American Automobile Association (AAA) estimates that there are 500,000 licensed drivers in the United States with significant physical impairments and another 1.5 million with lesser disabilities. AAA auto clubs throughout the country are working to improve the mobility of disabled drivers and travelers through improved driver education for those with impairments and improved facilities for the handicapped traveler, including motorist rest areas on the highway.
Public attitudes toward the disabled have changed. Since the 1970s, advocates for the disabled have won passage of numerous laws on the federal, state, and local levels aimed at making education, employment, and public accommodation more accessible through the elimination of physical barriers to access, as well as affirmative action in the hiring and professional advancement of disabled people. Whereas many people with disabilities were formerly confined to their homes or to institutions, the current trend is geared toward reintegrating disabled persons into the community in ways that enable them the greatest possible amount of independence in both their living arrangements and their jobs. Wheelchair access at building entrances, curbs, and public restrooms has been greatly expanded and mandated by law. Braille signs are standard in public areas such as elevators.
Two major pieces of federal legislation have protected the rights of the disabled: a 1975 law guaranteeing
|CAUSES OF DISABILITIES IN CHILDREN UNDER AGE 17|
|Mental or emotional problem or disorder||305||6.3%|
|Blindness or vision problem||144||3.0%|
|Epilepsy or seizure disorder||128||2.6%|
|Impairment deformity of back, side, foot, or leg||121||2.5%|
|Deafness or serious trouble hearing||116||2.4%|
|Tonsilitis or repeated ear infections||80||1.6%|
|Hay fever or other respiratory allergies||76||1.6%|
|Missing legs, feet, toes, arms, hands, or fingers||70||1.4%|
|Drug or alcohol problem or disorder||48||1.0%|
|Head or spinal cord injury||45||0.9%|
|Impairment deformity of finger, hand, or arm||27||0.6%|
disabled children a right to public education in the least restrictive setting possible and the 1990 Americans with Disabilities Act (ADA) , which extends comprehensive civil rights protection in employment and access to public areas. Title I of the ADA, which prohibits discrimination by private employers on the basis of disability, is intended to ensure that the same performance standards and job requirements are applied to disabled persons as to persons who are not. In cases where functional limitations may interfere with job performance, employers are required to take any necessary steps to accommodate reasonably the needs of a disabled person, including adjustments to the work environment or to the way in which the job is customarily performed. The ADA also contains provisions ensuring nondiscrimination in state and local government services (Title II) and nondiscrimination in public accommodations and commercial facilities (Title III).
Davis, Lennard J. Enforcing Normalcy: Disability, Deafness, and the Body. New York: Verso, 1995.
"Disability." Gale Encyclopedia of Psychology. 2001. Encyclopedia.com. (May 30, 2016). http://www.encyclopedia.com/doc/1G2-3406000194.html
"Disability." Gale Encyclopedia of Psychology. 2001. Retrieved May 30, 2016 from Encyclopedia.com: http://www.encyclopedia.com/doc/1G2-3406000194.html
The lack of competent physical and mental faculties; the absence of legal capability to perform an act.
The term disability usually signifies an incapacity to exercise all the legal rights ordinarily possessed by an average person. Convicts, minors, and incompetents are regarded to be under a disability. The term is also used in a more restricted sense when it indicates a hindrance to marriage or a deficiency in legal qualifications to hold office.
The impairment of earning capacity; the loss of physical function resulting in diminished efficiency; the inability to work.
In the context of workers' compensation statutes, disability consists of an actual incapacity to perform tasks within the course of employment, with resulting wage loss, in addition to physical impairment that might, or might not, be incapacitating.
Under federal law, the definition of a disability, for social security benefits purposes, requires the existence of a medically ascertainable physical or mental impairment that can be expected to result in death or endures for a stated period, and an inability to engage in any substantial gainful activity due to the impairment.
"Disability." West's Encyclopedia of American Law. 2005. Encyclopedia.com. (May 30, 2016). http://www.encyclopedia.com/doc/1G2-3437701411.html
"Disability." West's Encyclopedia of American Law. 2005. Retrieved May 30, 2016 from Encyclopedia.com: http://www.encyclopedia.com/doc/1G2-3437701411.html
Disability is a potentially limiting difference in the functioning of the human body. Disabilities can influence both the physical and mental well-being of a person, and they can have a strong impact on self-esteem and social adjustment.
for searching the Internet and other reference sources
Disability is a deviation from the normal range of functioning that places a limit on what a person can do or that imposes special conditions or needs that must be met to allow a person to function in the normal range or up to his or her full capacity. Disabilities can be mental, physical, psychological, or a combination of all three. The disability may be obvious to the casual observer, such as the loss of a leg, or invisible, such as a back injury. Some people prefer to refer to anyone whose range of function falls outside the norm as “differently abled,” to stress that the condition is a difference rather than a lack of completeness. Many people with so-called disabilities do quite well meeting the challenges of life.
People can be born with a disability. When this happens, it is called a congenital (kon-JEN-i-tal) disability. In many cases, the cause of a congenital disability is unknown. Some disabilities with known causes are:
- Inherited disabilities: Some disabilities are the result of genetic* disorders, for example, cystic fibrosis*.
- * genetic
- pertains to genes, which are the chemicals in the body that help determine physical and mental characteristics, such as hair or eye color. They are inherited from a person’s parents.
- * cystic fibrosis
- is an inherited disease of the body’s mucus-producing glands that usually appears in early childhood. It mainly affects the respiratory and digestive systems and can lead to difficulty breathing and infection in the lungs because of an accumulation of abnormally thick mucus in the airways and lungs.
- Exposure of the mother to disease during pregnancy: For example, a mother who has rubella* early in pregnancy may have a child who is deaf or who has other birth defects.
- * rubella
- also called German measles, is a viral infection that causes a rash and fever.
- Exposure of the mother during pregnancy to alcohol, drugs, harmful medications, pollutants, or chemicals: For example, if a mother drinks during pregnancy, she may have a child with fetal alcohol syndrome*.
- * fetal alcohol syndrome
- which occurs if the fetus is exposed to alcohol, is a condition that can be associated with mental, physical, and behavioral differences. Oppositional behavioral problems, learning difficul-ties, mental retardation, and retarded growth can occur in the children of women who drink alcohol while they are pregnant.
- Difficulties arising during the birth process: Complications can arise during the delivery of a baby, for example, the loss of an adequate oxygen supply to the brain, which can lead to brain damage and mental retardation.
Some people hold superstitious beliefs that birth defects are punishment for the sins or evils done by the parents or that they occur because the mother has been cursed during pregnancy. Although these ideas are clearly false, people with disabilities and their families sometimes must confront these unfounded beliefs in themselves and in others.
Disabilities also can be acquired at any time after birth. Acquired disabilities commonly arise from accidents, illness, working conditions that expose a person to an unhealthy environment (such as coal miners who breathe in coal dust), or repetitive physical stresses (such as repeated heavy lifting).
Self-image is the mental picture we have of ourselves, including our external appearance, our intellectual abilities, our strengths, and our weaknesses. This mental picture begins to develop in infancy and continues to grow and change throughout life. People develop their mental pictures through their interactions with other people and the world around them. Self-esteem is strongly linked to self-image. Self-esteem is the value that people put on the mental image that they have of themselves.
Self-image and congenital disabilities
Children who are born with a disability do not realize immediately that they are different from anyone else. Generally, children start to become aware of physical differences in human bodies, such as differences in hair and skin color, body size and shape, and gender, by their second year of life. Over time, children with disabilities realize that they are in some way different from most other people. At first this difference is neither good nor bad to them. Since congenitally disabled people may have never lived in a non-disabled body, they often feel complete, intact, and “okay” with the disability, even though the outside world may view them as different. Children whose parents accept them, support them, show pride in them and their abilities, and communicate factually and directly about the disability are more likely to develop good self-image and self-esteem.
When parents of children with disabilities encourage them to change and act more like “normal” people, hide their limitations, or dwell on things that they cannot do, the children may feel frustrated, unaccepted, and disappointed at not living up to their parents’ expectations. When they are faced repeatedly with other people’s negative reactions to their limitations, people with disabilities may come view themselves negatively and develop a poor self-image.
The conflict between “owning” a disability and making it part of oneself versus trying to get rid of the disability to become more like other people can be seen in the current debate in the deaf community about cochlear (KOK-lee-ar) implants. When these devices are installed surgically in a deaf person’s inner ear, they allow some deaf people to hear, but not like “congenitally hearing” people do. On one side of the debate are people who were born deaf and who are comfortable with their deafness. They see deafness and deaf culture as part of their identity, and they do not want to change. On the other side are those deaf people who believe that it is in their best interest to enter the mainstream of hearing people, if that is possible.
Self-image and acquired disabilities
People who acquire disabilities later in life have a different experience from those who are born with a disability. These people have lost something that has played a part in the development of their self-image, whether it is an arm or leg or the ability to perform a particular activity. People with acquired disabilities tend to go through a grieving process similar to the grieving process for any other major life loss. Their emotions usually follow these stages: grief, denial, anger, depression, working out a new way to live, and acceptance of the disability. Unfortunately, some people get stuck on one or more of these steps and may never reach the last two steps.
Self-image and chronic illness
Chronic illness is a special kind of “disability.” There are different kinds of chronic illnesses. Some illnesses, like diabetes*, often can be managed by the family doctor without hospitalization or pain. Others, such as back or neck injuries, can severely limit activities and may require treatment for pain with medications that may have some undesirable side effects. Progressive chronic illnesses, such as muscular dystrophy* or Alzheimer disease*, get worse with time and eventually can lead to death earlier than expected.
- * diabetes
- (dy-a-BEE-teez) is a condition in which the body is unable to take up and use sugar from the bloodstream normally to produce energy. It is caused by low levels of insulin (the hormone that controls this process) or the inability of the body to respond to insulin normally.
- * muscular dystrophy
- (DIS-trofee) is a group of inherited disorders that causes muscle weakening that worsens over time.
- * Alzheimer (ALTS-hy-mer) disease
- is a condition that leads to gradually worsening loss of mental abilities, including memory, judgment, and thinking, as well as changes in personality and behavior.
Some people with chronic illness may go through repeated periods of anger, sadness, and depression. They may become frustrated and angry at their caregivers or feel inadequate and embarrassed by the extra burden they place on loved ones. Several studies have shown that males have more emotional problems when they are faced with chronic illness than females, although researchers are not sure why this is true. It should be stressed that chronic illness does not necessarily result in chronic problems with self-image. Most people with chronic illness would not consider themselves disabled, and generally, with good health care and family support, they deal effectively with their illnesses.
In the middle of his career, artist Chuck Close became partially paralyzed due to a blood clot in his spinal column. To continue painting, he developed a technique that allowed him to work with his weakened hands from his wheelchair. He is still able to create the large, multicolored portraits for which he is known. A/P Associated Press
Most physicians and mental health practitioners agree that there is a connection between mental health and physical well-being. In general, the better a person’s self-image and self-esteem, the more able a person is to cope with life’s ups and downs and the better a person feels both mentally and physically.
Many studies have found that people with disabilities experience psychological problems (especially depression and anxiety) and behavior problems at about twice the rate of the non-disabled population. Family members of people with disabilities are also more likely to experience emotional problems brought on by the extra responsibilities, financial burdens, and limitations of caring for someone with a disability. Though chronic illness and disability include the risk of psychological problems, most individuals and families learn to cope with these conditions.
In 1996, the American Academy of Pediatrics reviewed many studies of people with disabilities and concluded that certain risk factors increase the chance that people with disabilities will experience psychological problems. Other “protective” factors appear to decrease the chance that a person with a disability will have psychological problems.
Risk factors that increase the likelihood of psychological problems include:
- chronic illnesses that are painful, unpredictable (like seizures), or embarrassing
- “invisible” disabilities (because people may feel stressed by wondering if they should tell others about their limitations)
- disabilities that require a schedule of time-sensitive special treatments
- poor social skills and a rigid personality
- failure of loved ones and professionals to talk honestly with the person about the disability
- failure of parents to address sexuality in teens with disabilities
- allowing the disability to become the focus of family life
- fighting between the parents or break-up of the parents’ marriage
- overprotectiveness on the part of parents or caregivers.
Factors that decrease the likelihood of psychological problems include:
- family acceptance of the disability
- strong bonds within the family that help the family work together
- open and direct communication about the nature of the disability and what to expect
- balancing of family needs with the needs of the disabled person
- good social skills and plenty of social interaction
- appropriate expectations of accomplishments
- a strong support network in the community.
Non-disabled people often are ignorant about the reality of life for a person with a disability. Some of the false beliefs people with disabilities frequently encounter include:
Myth: Disabled people are usually mentally retarded.
Reality: Most disabilities do not affect intelligence.
Myth: Disabled people are sick.
Reality: Illness is not the same as disability. Some people are disabled with chronic illness, while others are healthy.
Myth: People with disabilities can never have a good quality of life.
Reality: The quality of life mainly depends on the character of a person and society’s acceptance of a person than on the disability itself.
Myth: People with disabilities need continuous supervision and cannot lead independent lives.
Hundreds of wheelchair racers gather for the International Games for the Disabled, 1984. Peter Arnold, Inc.
Reality: The degree of independence a person achieves depends on the nature of the disability, the person’s education and training, and the accommodations that are available to make independent living physically possible.
Myth: People with disabilities are especially noble, brave, and courageous for coping with their handicaps.
Reality: There are all kinds of people with disabilities. Most disabled people carry on with their lives just as non-disabled people do.
The Americans with Disabilities Act is the federal law that is intended to integrate people with disabilities into mainstream life as much as possible. It requires that disabled people be provided with access to public and private spaces and with workplace accommodations and, whenever possible, that they be included in mainstream public education. Although physical accommodations, such as wheelchair-accessible restrooms or Braille instructions for the blind on automatic teller machines, are common in new buildings, many older facilities and private spaces still have not been renovated to accommodate people with physical disabilities.
Employers are increasingly willing to make workplace accommodations for people with physical disabilities, but they are still fearful of making such arrangements for people with emotional disabilities. The unemployment rate among disabled people, especially disabled women, is very high, and many people with disabilities are employed at jobs below their skill levels. Service industries hire more people with disabilities than any other type of employer. Ignorance on the part of the non-disabled is still the greatest barrier to achievement of their full potential for people with disabilities.
People with disabilities face some common challenges. At the same time, disabled people are also individuals with differing characters and needs. People who are born with a disability have self-image issues that are different from those of people who acquire a disability later in life. Someone who is confined to bed with a chronic (long-term) illness faces challenges that are different from someone who is healthy but who has a disability such as blindness or mental retardation.
Although researchers can draw a group picture of people who are disabled, this picture does not represent an individual with a disability any more accurately than a general picture of the “average American” represents a non-disabled person. Our society must learn to see people with disabilities as individuals, each with his or her own strengths, weaknesses, hopes, and dreams, before people with disabilities can achieve full equality.
Kent, Deborah, and Kathryn A. Quinlan. Extraordinary People with Disabilities. New York: Children’s Press, 1997. Profiles of more than 50 people with various disabilities.
Center for Disability Information and Referral, Indiana Institute on Disability and Community, 2853 East Tenth Street, Bloomington, Indiana 47408-2696. This organization, which is associated with Indiana University, provides referrals for all types of disabilities. They also have an educational website for disabled and non-disabled children. Telephone 812-855-9396 http://www.iidc.indiana.edu/~cedir
disAbility Online, a website provided by the United States Department of Labor, addresses work and education-related disability issues. The site includes a state-by-state resource guide. http://www.wdsc.org/disability
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dis·a·bil·i·ty / ˌdisəˈbilitē/ • n. (pl. -ties) a physical or mental condition that limits a person's movements, senses, or activities: children with severe physical disabilities. ∎ a disadvantage or handicap, esp. one imposed or recognized by the law: he had to quit his job and go on disability.
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—disabled (dis-ay-bŭld) adj.
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