Finding a home for Elijah

Beacon News, The (Aurora, IL) | October 6, 2003| | Copyright

Carolyn Austin has more of a burden to bear than your typical 25-year-old single mom. Her nightmare began two years ago when her 3-year-old daughter, Alissa Chartez Barron, who had been potty trained for a year, started wetting the floor. Within a matter of months, Alissa lost the ability to do the things she had once been able to do -- walk, talk, eat. By the time doctors diagnosed Alissa with Krabbe disease, a genetic disorder that effects the central nervous system, it was too late to help the little girl.

With Krabbe, a missing enzyme leads to the destruction of the protective coating ...

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